December 12
Interstitial cystitis anyone? I wasn’t expecting to hear I may have this at my doctor’s appointment yesterday and that it is common in women with Fibromyalgia. She called it “painful bladder syndrome”. So waiting on a referral to go to a urologist now. I had to wonder since so many of you also have Fibro how many of you dealt with this as well. I know I’m always so much fun 😉 (((pain-free internet hugs)))
Learn about this here: http://chronicfatigue.about.com/od/whyfmscfsarelinked/a/ICbladderpain.htm
Thank you in advance for your input and sharing your experiences to help answer this question. (((pain-free internet hugs)))
What our members have said so far:
Debra – Fortunately, I have never had Interstitial cystitis. But, a friend of mine who doesn’t have RA has it. They gave her a list of acidic foods and drinks that she should avoid to keep it at bay. Feel better, sweetie!
Patti Jo – I was Dx with IC 15 years before my Dx of RA.
Jessica – I was diagnosed with it about 6 years ago. Avoiding acidic foods/drinks and juices has kept things fine for me for a long time.
Shannon – Hum. I have never heard of it. But I have fibro, RA and chronic fatigue. Have been having a bladder problem and been trying to figure it out. This sounds like exactly what I have been dealing with.
Niki – I’ve had issues with mine on and off through the years. I actually when to a urologist three or four years ago and was diagnosed with bladder spasms plus inflammation. Now I’m really starting to wonder how much of it is all related.. I definitely don’t need another diagnosis like a hole in the head lol. Debra Miller I was just reading up on the diet. No spicy food no hot peppers That’s probably my biggest instigators. Hmm. Have any of you noticed that going on a fibro medication has improved these symptoms at all? They are putting me on both Lyrica and Cymbalta again.
Debbie – I have an irritated bladder but only happens day/night after I take my methotrexate. It’s the only time it hurts and causes multiple trips to the restroom at night.
Stephanie – I was diagnosed with IC 2 years ago. When I stick to the IC Smart Diet I do well.
Kathy – Yep, got it….like the others commented, staying away from acidic foods, tomatoes. And alcohol helps me as well as not drinking sodas…. It’s a bother, but manageable….
Niki – I just went to the bathroom for the second time since posting this I can’t stop going and it’s driving me nuts. They thought I had an infection on the 29th when I was there last but after round of antibiotics the symptoms were actually slightly worse not better. Time to start eliminating food again I guess.
Tamarae – I was dx with IC in Aug of 2011, and RA in May 2012. . . luckily my IC doesn’t hurt/burn like most, but I do have the urge issues worse than anyone I know with IC!
Lynne L- I was misdiagnosed IC and detruser muscle instability. Turned out my severe, chronic bladder pain was Stage 4 Endometriosis.
Trillian – RA likes IC, too. I think my RA dx is what kept me from having to have a biopsy to get the IC dx. fun, fun.
Tiffany – Have had it since I was a kid. LONG before RA was diagnosed. See a good uro-gyne for proper treatment. The diet helps too. Good luck! Feel free to message me if you would like to talk more about it.
Trillian – Gently but I, too, am lucky that mine is very manageable, compared to a lot of other cases I’ve heard of. Tons of water, which is no problem, cuz SS is in the mix, too. and kidney stones. lol?
Alicea – No alcohol, no carbonated liquids, lots of water.
Cassandra – I also have RA and IC and reading comments about the diet about non acidic food and drink makes sense, thanks for the advice, shame I have to be careful with spicy food though I love the stuff : (
Jennifer – I have both as well. IC doesn’t act up as long as I don’t eat or drink too much acidic food.
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